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"Kate’s life in Baton Rouge, full of friends and family, gymnastics and Girl Scouts, is just plain great. But then, at the age of twelve, she suddenly develops a mysterious shoulder pain that won’t go away . . . and that will change her life forever. It turns out that Kate has one of the rarest genetic disorders in the world, Fibrodysplasia Ossificans Progressiva. FOP causes bone to form in places in the body where it shouldn’t, and there’s...
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"Vanessa lives life on her own terms -- one day at a time, every day to its fullest. She can't afford to think about whether she has the same fatal genetic condition as her older sister. After all, she has way too much to do, traveling the globe and showing millions of YouTube followers the joy in seizing every moment. But lately, life has been anything but pure joy, and travel has come to an abrupt halt. After her younger step-sister drops off an...
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